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Nothing About Us, Without Us

Nothing About Us, Without Us
When critical medical decisions are made, patients must have a seat at the table
In September 2018, the health ministry's Central Tuberculosis Division constituted a national expert group to tackle India's biggest infectious disease crisis. With India home to the highest number of TB patients globally formation of the panel, consisting of doctors and bureaucrats, was seen as an important step to provide technical expertise and guidance on TB control.
A month before that, the health ministry set up an expert committee in August 2018 to finalize a method, and to arrive at a formula to calculate the monetary compensation for patients fitted with pharmaceutical giant Johnson & Johnson's (J& J) faulty ASR (acetabular surface replacement) hip implants.
What was common to the two committees? None of them had any patient representation. Noting this, the patient groups fighting for compensation from J&J summarily rejected a government-approved formula to compensate them for damages. 

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